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Research & Publications

Current Partner Research & Publications

Hunter Medical Research Institute (HMRI)

MIDAS (Modafinil in Debilitating Fatigue After Stroke) - A Randomzed, Double-Blind, Placebo-Controlled, Cross-Over Trial - This article was published in the Stroke Journal and was prepared by Andrew Bivard, Thomas Lillicrap, Venkatesh Krishnamurthy, Elizabeth Holliday, John Attia, Heather Pagram, Michael Nilsson, Mark Parsons, Christopher R. Levi. It outlines the methodology and outcomes of the Phase 2 Modafinil trial, the success of which resulted in the progression of the trial to Phase 3, funded by the Greater Charitable Foundation. 

Perfusion computed tomography to assist decision making for stroke thrombolysis - This research paper was published in the Brain Journal of Neurology and was prepared by Andrew Bivard, Christopher Levi, Venkatesh Krishnamurthy, Patrick McElduff, Ferdi Miteff, Neil J. Spratt, Grant Bateman, Geoffrey Donnan, Stephen Davis, Mark Parsons 

McGrath Foundation

The Impact of Breast Care Nurses: An Evaluation of the McGrath Foundation's Breast Care Nurse Initiative - Over the four years to 30 June, 2017 the McGrath Foundation’s Second  Federal Government Breast Care Nurse (BCN) Initiative funded 57 McGrath BCNs (MBCNs) to deliver better continuity of care and provide specialized support
to those diagnosed with and undergoing treatment for breast cancer. This article summarizes the findings generated through a mixed‑method evaluation of the program’s appropriateness, effectiveness, and efficiency.

Previous Partner Research & Publications

Everymind

Supporting mental health, resilience and wellbeing in families experiencing a childhood chronic illness: A synthesis of evidence to support the Childhood Illness Resilience Program - Article prepared by A/Professor Harriet Hiscock, Dr Lauren Williams, Dr Emily Incledon, Ms Alexandra Flowers at the Centre for Community Child Health at the Royal Children’s Hospital, Melbourne Murdoch Childrens Research Institute.

 The Child Illness and Resilience Program (CHiRP) Fact Sheet - For more information about the development, dissemination and evaluation of the CHiRP resource.

Document package for Child Illness Resilience Program National Reference Group Members for ongoing communications and promotion - This document package contains the CHiRP briefing document, suggested newsletter articles for stakeholders, key messages, suggested fact sheets for social media and promotional purposes and frequently asked questions

The Child Illness and Resilience Program (CHiRP): a study protocol of a stepped care intervention to improve the resilience and wellbeing of families living with childhood chronic illness - Article written by Katrina M Hamall, Todd R Heard, Kerry J Inder, Katherine M McGill and Frances Kay-Lambkin.

Youth Off The Streets & Autism Spectrum Australia (Aspect)

Youth Off The Streets

In 2015, Youth Off The Streets undertook a Social Return on Investment (SROI) study into the Hunter Valley Outreach Program, funded by the Greater Charitable Foundation.

Hunter Valley Outreach Program description:
The Hunter Valley Outreach program supports local communities within the greater Cessnock and Maitland regions, focusing on early-intervention outreach and education programs for disadvantaged children, young people and their families. The program contributes to the attainment of knowledge, skills and motivation to reach for positive life choices. In the longer-term this contributes to building community capacity and bringing about intergenerational change in an area suffering entrenched social and economic disadvantage.

Outcome:
The report found that for every $1.00 spent on Hunter Valley Outreach, $2.40 worth of benefit was generated.

 Aspect

Evaluation of the Early Intervention Readiness Program (EIRP): A post-autism diagnosis family support program - Aspect acknowledges the contribution of those involved in the development, delivery and appraisal of the EIRP including Rachel Kerslake, Rhiannon Tolmie, Jessica Fenwick, Eliza Clarke, Joanne McGregor and Susanna Baldwin. Special appreciation is also extended to the families who have been involved in thus program evaluation and to the Hunter Region services that have supported the EIRP through family referral.