Collaboration, Research & Publications
The Greater Charitable Foundation believes that collaboration is key to the success of the philanthropic sector. As such, we are passionate about encouraging and facilitating collaboration between our charity partners as well as participating in collaborative initiatives ourselves, with other organisations undertaking life-changing work in our communities. From 2016-2018, we joined more than 8 different funding bodies - representing the State Government and philanthropic sectors - who collaborated to support a community initiative of the Foundation for Rural and Regional Renewal (FRRR) known as Innovation for Community Impact (I4CI). The I4CI program focused on addressing pressing and persistent social issues facing communities in 10 regional NSW LGA's situated in the Hunter and Mid North Coast regions.
We are also part of the Hunter Corporate Collaborative (HCC), an initiative that has brought together 8 Hunter-based organisations to participate in collective community giving, knowledge-sharing and support. In early 2019, HCC provided over $100,000 in funding to assist the region's farming community as they battle with the ongoing drought. Upper Hunter Community Services (UHCS) and Singleton Neighbourhood Centre (SNC) were the two organisations who received the funding from this initiative. UHCS have established a counselling and laundry service to support families experiencing the drought, whilst SNC are delivering workshops on training in basic business and marketing operations so that participants gain the knowledge and practical skills to successfully diversify their income.
Current Partner Research & Publications
Hunter Medical Research Institute (HMRI)
MIDAS (Modafinil in Debilitating Fatigue After Stroke) - A Randomzed, Double-Blind, Placebo-Controlled, Cross-Over Trial - This article was published in the Stroke Journal and was prepared by Andrew Bivard, Thomas Lillicrap, Venkatesh Krishnamurthy, Elizabeth Holliday, John Attia, Heather Pagram, Michael Nilsson, Mark Parsons, Christopher R. Levi. It outlines the methodology and outcomes of the Phase 2 Modafinil trial, the success of which resulted in the progression of the trial to Phase 3, funded by the Greater Charitable Foundation.
Perfusion computed tomography to assist decision making for stroke thrombolysis - This research paper was published in the Brain Journal of Neurology and was prepared by Andrew Bivard, Christopher Levi, Venkatesh Krishnamurthy, Patrick McElduff, Ferdi Miteff, Neil J. Spratt, Grant Bateman, Geoffrey Donnan, Stephen Davis, Mark Parsons
No Evidence of the 'Weekend Effect' in the Northern NSW Telestroke Network - This research article was published in Frontiers in Neurology online platform and was prepared by Andrew Bivard, Thomas Lillicrap, Alex Pinheiro, Ferdinand Miteff, Pablo Garcia-Bermejo, Shyam Gangadharan, Thomas Wellings, Billy O'Brien, James Evans, Khaled Alanati, Mark Parsons, Christopher Levi, Carlos Garcia-Esperon and Neil Spratt on behalf of the Northern NSW Telestroke investigators. This research aims to examine differences in workflow and triage between in-hours and out-of-hours calls to a telestroke service.
Cluster-Randomized Trial of Thrombolysis Implementation Support in Metropolitan and Regional Australia Stroke Centers: Lessons for Individual and Systems Behavior Change - This research article was published in the Journals of the American Heart Association and was prepared by Andrew Bivard, Christopher Levi, John Attia, Cate D'Este, Annika Ryan, Frans Henskens, Erin Kerr, Mark Parsons, Robert Sanson-Fisher, Christopher Baldin, Richard Lindley, Sandy Middleton, Christine Paul and the TIPS (Thrombolysis Implementation in Stroke) Study Group.
- Developing a multivariable prediction model for functional outcome after reperfusion therapy for acute ischaemic stroke: study protocol for the Targeting Optimal Thrombolysis Outcomes (TOTO) multicentrer cohort study - This research article was published in the BMJ Open Journals and was prepared by Andrew Bivard, Elizabeth Holliday, Thomas Lillicrap, Timothy Kleining, Philip Choi, Jane Mcguire, Lisa Lincz, Monica Anne Hamilton-Bruce, Sushma Rao, Marten Snel, Paul Trim, Longting Lin, Mark Parsons, Bradford Worrall, Simon Koblar, John Attia and Chris Levi.
- Cognition in the First Year After a Minor Stroke, Transient Ischemic Attack, or Mimic Event and the Role of Vascular Risk Factors - This research article was published in Frontiers in Neurology online platform and was prepared by Andrew Bivard, Korinne Nicolas, Christopher Levi, Tiffany Jane Evans, Pat Michie, Debbie Quain and Frini Karayanidis.
Permeability measures predict haemorrhagic transformation after ischemic stroke - This research article was published in Annals of Neurology and was prepared by Andrew Bivard, Timothy Kleining, Leonid Churilov, Christopher Levi, Longting Lin, Xin Cheng, Chushuang Chen, Richard Aviv, Philip Choi, Neil Spratt, Kenneth Butcher, Qiang Dong and Mark Parsons.
Air vs. Road Decision for Endovascular Clot Retrieval in a Rural Telestroke Network - This research article was published in Frontiers in Neurology online platform and was prepared by Andrew Bivard, Shyam Gangadharan, Thomas Lillicrap, Ferdinand Miteff, Pablo Garcia-Bermejo, Thomas Wellings, Billy O'Brien, James Evans, Khaled Alanati, Christopher Levi, Mark Parsons, Carlos Garcia-Esperon and Neil Spratt for the Northern NSW Telestroke Investigators.
Implementation of multimodal computed tomography in a telestroke network: Five-year experience - This research article was published in CNS Neuroscience & Therapeutics Journal and was prepared by Andrew Bivard, Carlos Garcia-Esperon, Forde Soderhjelm Dinkelspiel, Ferdinand Miteff, Shyam Gangadharan, Thomas Wellings, Bill O'Brien, James Evans, Thomas Lillicrap, Jelle Demeestere, Mark Parsons, Christopher Levi and Neli James Scott for the NSW Telestroke Investogators.
The Role of a Food Literacy Intervention in Promoting Food Security and Food Literacy - OzHarvest's NEST Program - This research article was published in Nutrients MDPI and was prepared by Elisha West, Rebecca Lindberg, Kylie Ball and Sarah McNaughton.
Previous Partner Research & Publications
- Parenting Through Cancer: A guide for parents of adolescents and young adults with cancer in the family - CanTeen undertook a study to further explore the impact of cancer on family dynamics and identified additional support options. The study findings combined with insights from the social worker provided the basis for an information guide specifically designed for parents with cancer who have children aged between 12-25 years. It is aimed at helping parents talk to their family about cancer and act as a companion through this challenging time.
- A summary of high quality online information resources for parents with cancer who have adolescent and young adult children: A scoping review - Article prepared by Dr Nicole Weeks, Dr Fiona E.J. McDonald, Dr Pandora Patterson, Stephanie Konings and Professor Jane Coad for the US-based Journal of Psycho-Oncology. This scoping review assesses what online information resources are available to help parents with cancer maintain family functioning, the quality of available information, and whether resources provide specific advice for parents of adolescent and young adult children.
- Supporting mental health, resilience and wellbeing in families experiencing a childhood chronic illness: A synthesis of evidence to support the Childhood Illness Resilience Program - Article prepared by A/Professor Harriet Hiscock, Dr Lauren Williams, Dr Emily Incledon, Ms Alexandra Flowers at the Centre for Community Child Health at the Royal Children’s Hospital, Melbourne Murdoch Childrens Research Institute.
- The Child Illness and Resilience Program (CHiRP) Fact Sheet - For more information about the development, dissemination and evaluation of the CHiRP resource.
- Document package for Child Illness Resilience Program National Reference Group Members for ongoing communications and promotion - This document package contains the CHiRP briefing document, suggested newsletter articles for stakeholders, key messages, suggested fact sheets for social media and promotional purposes and frequently asked questions
- The Child Illness and Resilience Program (CHiRP): a study protocol of a stepped care intervention to improve the resilience and wellbeing of families living with childhood chronic illness - Article written by Katrina M Hamall, Todd R Heard, Kerry J Inder, Katherine M McGill and Frances Kay-Lambkin.
The Impact of Breast Care Nurses: An Evaluation of the McGrath Foundation's Breast Care Nurse Initiative - Over the four years to 30 June, 2017 the McGrath Foundation’s Second Federal Government Breast Care Nurse (BCN) Initiative funded 57 McGrath BCNs (MBCNs) to deliver better continuity of care and provide specialized support
to those diagnosed with and undergoing treatment for breast cancer. This article summarizes the findings generated through a mixed‑method evaluation of the program’s appropriateness, effectiveness, and efficiency.
Breast cancer nursing interventions and clinical effectiveness: a systematic review - The objective of this review is to examine the effects of nurse-led interventions on the health-related quality of life, symptom burden and self-management/behavioural outcomes in women with breast cancer.
Youth Off The Streets
In 2015, Youth Off The Streets undertook a Social Return on Investment (SROI) study into the Hunter Valley Outreach Program, funded by the Greater Charitable Foundation.
Hunter Valley Outreach Program description:
The Hunter Valley Outreach program supports local communities within the greater Cessnock and Maitland regions, focusing on early-intervention outreach and education programs for disadvantaged children, young people and their families. The program contributes to the attainment of knowledge, skills and motivation to reach for positive life choices. In the longer-term this contributes to building community capacity and bringing about intergenerational change in an area suffering entrenched social and economic disadvantage.
The report found that for every $1.00 spent on Hunter Valley Outreach, $2.40 worth of benefit was generated.
Autism Spectrum Australia (Aspect)
Evaluation of the Early Intervention Readiness Program (EIRP): A post-autism diagnosis family support program - Aspect acknowledges the contribution of those involved in the development, delivery and appraisal of the EIRP including Rachel Kerslake, Rhiannon Tolmie, Jessica Fenwick, Eliza Clarke, Joanne McGregor and Susanna Baldwin. Special appreciation is also extended to the families who have been involved in thus program evaluation and to the Hunter Region services that have supported the EIRP through family referral.